We Have a Team! Walk 4 Hearing – October 25, 2020

We have a team! A walk team, that is.  Each year, HLAA sponsors the New England Walk for Hearing.  This year is no different with the exception that our walk will be virtual on Sunday, 10/25. That is NOW!
Here is the link to join in on all the fun and progress:
  • Schedule
    9:45 a.m. (ET) Sign on begins
    10:00 a.m. (ET) Online program begins
This year is different.  It is virtual.  And, as we’ve all come to find out, issues with hearing loss have been thrust into the forefront with COVID. While our “troubles” pale in comparison to the tragedy of all the lives lost to this devastating disease, they are real to each and everyone of us in different ways.
Your support counts now more than ever. Please consider giving so we can continue advocating for those of us with hearing loss at a time where access to basic communication has never been more critical.
Please join our team at:
 http://hlaa.convio.net/site/TR/Teamraiser/NewEnglandWalk?team_id=49696&pg=team&fr_id=2649.
Look for our team under HearatBoston. Hope to “see” you there.

Webinar on Health Care, Hearing Loss Communication Challenges – Sept. 30, 2020

Center for Hearing and Communication logoJoin CHC September 30th for “Health Care, Hearing Loss and Communication Challenges: Taking Charge in 2020 and Beyond” – a dynamic discussion about our changing health care system and how to navigate it with a hearing loss. We will include perspective and guidance from patients and a physician who uses two cochlear implants.

Learn insider tips and strategies to access effective communication during your virtual and in-person appointments, including what to say and do when things don’t go well or as planned. This program will cover a range of accessibility tools, technology and smartphone apps and will detail real-world scenarios you can use in different situations to optimize your health care experience. Discussion followed by Q&A.

Real-time captioning and ASL interpreter provided.

For more information, visit <https://chchearing.org/community/events/health-care-hearing-loss-covid-communication-access-webinar/>.

HLAA Boston Chapter Mini-Newsletter September, 2020

Betty Hauck writes in hearatboston@googlegroups.com:

A few items of interest:

ADA Anniversary

Jonathan Taylor, head of New York City HLAA chapter,  sent this link to a YouTube video of their Sept. 1 meeting celebrating the anniversary of the landmark legislation establishing the ADA, the Americans with Disabilities Act.

Jonathan writes: “The September 1 chapter meeting was a celebration of the ADA, with introductory remarks by long-time chapter board member, Anne Pope, about the history of the ADA and HLAA’s role in its enactment. We were honored to have JoAnne Simon as our main speaker. Ms. Simon is a member of the NY State Assembly for the 52nd District in Brooklyn and a disability rights attorney. She is a graduate of Iona College, holds a Master’s degree in Education of the Deaf from Gallaudet University, and a law degree from Fordham University School of Law, which she earned while working full time.”

You can view a captioned recording at the You Tube link https://youtu.be/vdWUMPU4yUg

The Best Diet for Your Ears

There is a recent article in Consumer Reports about how diet is connected to hearing health. Several recent studies show that a diet that is good for your heart, like the Mediterranean Diet which emphasizes plant-based food, is also good for your hearing. Here is an excerpt from the article:

“I tell all my patients with hearing loss to follow a heart-healthy diet,” Dr. Woodson says. “If it’s good for your heart, it’s going to be good for your ears, as well.”

Heart-healthy eating patterns, including the three approaches used in Curhan’s studies, are mostly centered on lots of high-quality plant-based foods and low amounts of animal-based foods, refined grains, added sugars, and unhealthy fats. To make it easy, Curhan recommends at each meal filling half your plate with fruits and veggies (but limiting starchy ones, like potatoes). The other half should be made up of whole grains and plant-based protein, such as tofu, lentils, or nuts most days, with fish and modest amounts of lean meat, and poultry less often. Unsaturated oils such as olive or vegetable oils can also be used.”

HLAA Boston Chapter Meeting, September 26, 2020

Don’t forget the first Boston Chapter meeting of the season,  Saturday the 26th, at 4 PM via Google Meet, which is captioned.

A chance to meet and greet and find out what’s new with the Boston Chapter. You will be receiving a link soon via Email.

Technical questions about using Google Meet? Andrea Kaneb is happy to help: ajkaneb@gmail.com.

Be well, stay safe.

HLAA Webinar: Cochlear Implants Standards of Care – Tuesday, September 29, 2020 2 p.m. ET


HLAA WEBINAR

Cochlear Implants Standards of Care:
An International Consensus

Tuesday, September 29, 2020
2 p.m. Eastern Time
(1 p.m. CT, 12 p.m. MT, 11 a.m. PT)


Presenters

Craig A. Buchman, M.D.

Lindburg Professor and Head, Department of Otolaryngology-Head & Neck Surgery Washington University School of Medicine, St. Louis

René H. Gifford, Ph.D.

Professor, Department of Hearing and Speech Sciences, with a joint appointment in the Department of Otolaryngology Vanderbilt University School of Medicine

The world’s first International Consensus Paper on Adult Cochlear Implantation was published on August 27, 2020 in JAMA Otolaryngology–Head & Neck Surgery. This new study focuses on treatment for adults living with severe to profound sensorineural hearing loss (SNHL) which recommends minimum standards for diagnosis, referral, treatment and aftercare.

The publication is expected to help many more adults with severe to profound bilateral sensorineural hearing loss access cochlear implant treatment, noting the industry estimate that only one in 20 people worldwide who could benefit from a cochlear implant has one.

HLAA played a leading role in this ground-breaking process, with Executive Director Barbara Kelley as co-chair of the Consumer and Professional Advocacy Committee (CAPAC). International cochlear implant user and professional advocacy organizations ensured the voice of consumers was heard throughout the Delphi process.

Dr. Craig Buchman, lead author of the paper, and Dr. René Gifford, one of 31 experts who authored the paper and participated in the Delphi Consensus Process, will talk about why these standards of care are needed at this time and what they mean to people with hearing loss.

Read more about the paper and the process before or after attending the webinar.

About our Speakers

Craig A. Buchman, M.D., is a world-renowned cochlear implant surgeon with broad research achievements in the field of hearing loss and rehabilitation. He recently chaired an international panel of 31 cochlear implant experts that conducted the first Delphi Consensus process to establish minimum standards of care for adults with severe to profound bilateral sensorineural hearing loss. Dr. Buchman is the lead author of the International Consensus Paper on Cochlear Implant Treatment for Adult Hearing Loss published in JAMA Otolaryngology (August 27, 2020) which recommends minimum standards for diagnosis, referral, treatment and aftercare.
René H. Gifford, Ph.D., is the director of the Cochlear Implant Program at the Vanderbilt Bill Wilkerson Center in the Division of Audiology as well as the director of the Cochlear Implant Research Laboratory. Dr. Gifford’s National Institutes of Health-funded research investigates basic auditory function and spatial hearing abilities for individuals using combined electric and acoustic stimulation (EAS), hearing preservation with cochlear implantation and speech perception for adults and children with cochlear implants. She has published more than 100 peer-reviewed papers and authored a book now in its second edition titled Cochlear Implant Patient Assessment: Evaluation of Candidacy, Performance, and Outcomes. Dr. Gifford was one of 31 experts who authored the International Consensus Paper on Cochlear Implant Treatment for Adult Hearing Loss.

Note: Webinar will be captioned and recorded for playback on the HLAA website at hearingloss.org.

There is a Connection Between Your Diet and Your Ears

From Consumer Reports

Listen Up! What You Eat Can Protect Your Hearing
There is a connection between your diet and your ears
By Hallie Levine
September 14, 2020:

“I tell all my patients with hearing loss to follow a heart-healthy diet,” Dr. Woodson says. “If it’s good for your heart, it’s going to be good for your ears, as well.”

Heart-healthy eating patterns, including the three approaches used in Curhan’s studies, are mostly centered on lots of high-quality plant-based foods and low amounts of animal-based foods, refined grains, added sugars, and unhealthy fats. To make it easy, Curhan recommends at each meal filling half your plate with fruits and veggies (but limiting starchy ones, like potatoes). The other half should be made up of whole grains and plant-based protein, such as tofu, lentils, or nuts most days, with fish and modest amounts of lean meat, and poultry less often. Unsaturated oils such as olive or vegetable oils can also be used.”

Follow this link for the full report:

https://www.consumerreports.org/hearing-ear-care/what-you-eat-can-protect-your-hearing-diet-hearing-connection/.

Celebrating the Americans with Disability Act

Jonathan Taylor, head of New York City HLAA chapter,  sent this link to a YouTube video of its Sept. 1st, 2020  meeting celebrating the anniversary of the landmark legislation establishing the ADA, the Americans with Disabilities Act.

Jonathan writes:

“The September 1 chapter meeting was a celebration of the ADA, with introductory remarks by long-time chapter board member, Anne Pope, about the history of the ADA and HLAA’s role in its enactment. We were honored to have JoAnne Simon as our main speaker. Ms. Simon is a member of the NY State Assembly for the 52nd District in Brooklyn and a disability rights attorney. She is a graduate of Iona College, holds a Master’s degree in Education of the Deaf from Gallaudet University, and a law degree from Fordham University School of Law, which she earned while working full time.”

You can view a captioned recording of the YouTube at the link below:

https://youtu.be/vdWUMPU4yUg

Betty Hauck Presents A Life in Music Lost Found- Oct. 17, 2020, 4:00 pm

A Life in Music Lost & Found

My Journey as a Musician with Hearing Loss

A “Talk & Play” presentation by

Betty Hauck, violin and viola

Betty hauck violinFor 50 years, Betty enjoyed a rich and rewarding career as a professional violist—until the day she realized that she had to retire because of progressive hearing loss. For three years, she completely turned her back on music. In this “Talk & Play” presentation, she will tell the story of how various twists and turns led her back into sharing the joy of music while educating and advocating for those with hearing loss. Her talk will be punctuated by short musical selections on both violin and viola. The program is about one hour and includes Q&A at the end.

BettyHauck

A Google Meet Presentation. Log in instructions to follow

Saturday,  October 17,  2020, 4:00 pm

Highlights of Betty’s career include performing for the Kennedys at the White House, playing in a string quartet with Yo-Yo Ma and, as a founding member of the Apple Hill Chamber Players, touring the Middle East annually, performing and teaching young Palestinian and Jewish music students.

 Betty was featured in an NPR story about musicians and hearing loss: http://www.wbur.org/hereandnow/2018/04/17/classical-musicians-hearing-loss

Contact: bettiola@comcast.net

Saturday, September 26, 2020 4:00 pm – Welcome Back Chapter Meeting

Welcome back Hear@Boston, your Boston HLAA chapter.    We will have our first gathering on September 26th – Newcomers and vistors welcome!  This will be our first meeting of the new season, a chance for us to catch up with old friends, meet new friends,  and to hear about exciting developments in the chapter.  Please join in  and learn what good things are ahead.

Details for logging into this Google Meet gathering will be posted soon.

New England Walk4Hearing Online Celebration-Sunday, October 25, 2020

Let’s stay connected and celebrate our Walk4Hearing community! Join us on Walk Day to show support for people with hearing loss and connect with fellow walkers and new friends. There will be special guests, chances to win prizes, and the opportunity to share stories. After the online celebration, participants are encouraged to walk safely with family or as a team in their neighborhoods.

Featuring:
Bruce Peterson, Honorary Walk Chair
Gael Hannan, hearing loss advocate, writer, and humorist
Joss Kendrick, American Girl’s 2020 Girl of the Year
YOU, the heart of the Walk4Hearing community!

Sunday, October 25, 2020
Sign on begins, 9:45 a.m. ET
Program starts, 10:00 a.m. ET

A link to join the celebration will be provided when go to the URL below.   You will be prompted to  fill in your name, then click on “Submit RSVP”

http://hlaa.convio.net/site/TR?fr_id=2649&pg=entry

Then check your email for a message from walk4hearing@hearingloss.org.

Sept. 12, 2020 – HLAA Virtual Meeting – A Conversation with Barbara Kelley Connecting and Adapting During the Coronavirus Pandemic

HLAA Virtual Meeting – A Conversation with Barbara Kelley
Connecting and Adapting During the Coronavirus Pandemic

Presented by HLAA California State Association
Saturday, September 12, 2020
4 p.m. ET, 3 p.m. CT, 2 p.m. MT, 1 p.m. PT

Join us for an inspiring and enlightening conversation with HLAA Executive Director Barbara Kelley about adapting during the coronavirus pandemic, communication opportunities, continued advocacy for our rights, the value of chapters and state associations, and moving forward.
Archive may be available at
https://www.hearingloss.org/programs-events/webinars/schedule-recordings/